In Memory of Professor Hawking

"My expectation was reduced to zero when I was 21. Everything else then has been a bonus." 
(Professor Stephen Hawking)
Professor Hawkins's golden motto: life is a process to learn acceptance – to accept that things are the way they are and to make the best of it. 

There is life, there is hope.

In memory of Professor Stephen Hawking, I read my note again written in 2006 about his book - A brief History of Mine, studying his attitude towards life and death,  science and media.

Again, I was deeply moved by his achievements, determination and outlook to life esp. his attitude to disability, diseases and death. I was esp. impressed by his  humor and passion to make life meaningful.

I realized that everyone has to face life, diseases and death. One has to learn to how face them and learn how to ask for help.

Quotes from My brief history:

The shock:

The realisation that I had an incurable disease, that was likely to kill me in a few years, was a bit of a shock. How could something like that happen to me. Why should I be cut off like this. However, while I had been in hospital, I had seen a boy I vaguely knew die of leukaemia, in the bed opposite me. It had not been a pretty sight. Clearly there were people who were worse off than me. At least my condition didn't make me feel sick. Whenever I feel inclined to be sorry for myself I remember that boy.

His bad dreams:

I dreamt that I was going to be executed. I suddenly realized that there were a lot of worthwhile things I could do if I were reprieved. Another dream that I had several times, was that I would sacrifice my life to save others. After all, if I were going to die anyway, it might as well do some good

Others’ help:

Have your working surroundings and colleagues had to adjust to incorporate you as a disabled person? If so how?
My university department is housed in an old printing works but it has been fitted with an entrance ramp and other adaptations for my use. The department will shortly move to a new building and I have been able to make sure the design is suitable. My colleagues have been very helpful. They treat me like anyone else, but help with my special needs. That is what I like.

Fame:

Why do you feel you have been given celebrity status as a scientist? Do you think your disability has a bearing on that? 

I'm sure my disability has a bearing on why I'm well known. People are fascinated by the contrast between my very limited physical powers, and the vast nature of the universe I deal with. I'm the archetype of a disabled genius, or should I say a physically challenged genius, to be politically correct. At least I'm obviously physically challenged. Whether I'm a genius is more open to doubt.

How to face discrimination:

What do you say to the comment "isn't it a shame that such a brilliant mind is trapped inside a useless body"? 

I have never heard anyone say isn't it a shame that such a brilliant mind is trapped inside a useless body. If I did, I would treat it with the contempt it deserved.

Does being known as brilliant make a difference to the way you are treated as a disabled person?

I generally find that even people that haven't heard of me treat me well and are helpful. I'm not sensitive, if occasionally they patronize me, I just feel it's their mistake.

A brief about his life:

I have had motor neurone disease for practically all my adult life. Yet it has not prevented me from having a very attractive family, and being successful in my work. This is thanks to the help I have received from Jane, my children, and a large number of other people and organisations. I have been lucky, that my condition has progressed more slowly than is often the case. But it shows that one need not lose hope.

His achievements:

In university, ‘Stephen wanted to do Mathematics, although his father would have preferred medicine. Mathematics was not available at University College, so he did Physics instead. After three years and not very much work he was awarded a first class honours degree in Natural Science.’

Stephen then went on to Cambridge to do research in Cosmology, there being no-one working in that area in Oxford at the time. His supervisor was Denis Sciama, although he had hoped to get Fred Hoyle who was working in Cambridge. After gaining his Ph.D. he became first a Research Fellow, and later on a Professorial Fellow at Gonville and Caius College. After leaving the Institute of Astronomy in 1973 Stephen came to the Department of Applied Mathematics and Theoretical Physics, and since 1979 has held the post of Lucasian Professor of Mathematics. The chair was founded in 1663 with money left in the will of the Reverend Henry Lucas, who had been the Member of Parliament for the University. It was first held by Isaac Barrow, and then in 1663 by Isaac Newton.

His many publications include The Large Scale Structure of Spacetime with G F R Ellis, General Relativity: An Einstein Centenary Survey, with W Israel, and 300 Years of Gravity, with W Israel. Stephen Hawking has two popular books published; his best seller A Brief History of Time, and his later book, Black Holes and Baby Universes and Other Essays.

Professor Hawking has twelve honorary degrees, was awarded the CBE in 1982, and was made a Companion of Honour in 1989. He is the recipient of many awards, medals and prizes and is a Fellow of The Royal Society and a Member of the US National Academy of Sciences.

Stephen Hawking continues to combine family life (he has three children and one grandchild), and his research into theoretical physics together with an extensive programme of travel and public lectures.

---

His theory:

Stephen Hawking has worked on the basic laws which govern the universe. With Roger Penrose he showed that Einstein's General Theory of Relativity implied space and time would have a beginning in the Big Bang and an end in black holes. These results indicated it was necessary to unify General Relativity with Quantum Theory, the other great Scientific development of the first half of the 20th Century. One consequence of such a unification that he discovered was that black holes should not be completely black, but should emit radiation and eventually evaporate and disappear. Another conjecture is that the universe has no edge or boundary in imaginary time. This would imply that the way the universe began was completely determined by the laws of science.

A long-term struggle with diseases - His disable life and attitudes to life and death

 Disability - My Experience with ALS

I am quite often asked: How do you feel about having ALS. The answer is, not a lot. I try to lead as normal a life as possible, and not think about my condition, or regret the things it prevents me from doing, which are not that many.
It was a great shock to me to discover that I had motor neurone disease. I had never been very well co-ordinated physically as a child. I was not good at ball games, and my handwriting was the despair of my teachers. Maybe for this reason, I didn't care much for sport or physical activities. But things seemed to change when I went to Oxford, at the age of 17. I took up coxing and rowing. I was not Boat Race standard, but I got by at the level of inter-College competition.

In my third year at Oxford, however, I noticed that I seemed to be getting more clumsy, and I fell over once or twice for no apparent reason. But it was not until I was at Cambridge, in the following year, that my father noticed, and took me to the family doctor. He referred me to a specialist, and shortly after my 21st birthday, I went into hospital for tests. I was in for two weeks, during which I had a wide variety of tests. They took a muscle sample from my arm, stuck electrodes into me, and injected some radio opaque fluid into my spine, and watched it going up and down with x-rays, as they tilted the bed. After all that, they didn't tell me what I had, except that it was not multiple sclerosis, and that I was an a-typical case. I gathered however, that they expected it to continue to get worse, and that there was nothing they could do, except give me vitamins. I could see that they didn't expect them to have much effect. I didn't feel like asking for more details, because they were obviously bad.

The realisation that I had an incurable disease, that was likely to kill me in a few years, was a bit of a shock. How could something like that happen to me. Why should I be cut off like this. However, while I had been in hospital, I had seen a boy I vaguely knew die of leukaemia, in the bed opposite me. It had not been a pretty sight. Clearly there were people who were worse off than me. At least my condition didn't make me feel sick. Whenever I feel inclined to be sorry for myself I remember that boy.

Not knowing what was going to happen to me, or how rapidly the disease would progress, I was at a loose end. The doctors told me to go back to Cambridge and carry on with the research I had just started in general relativity and cosmology. But I was not making much progress, because I didn't have much mathematical background. And, anyway, I might not live long enough to finish my PhD. I felt somewhat of a tragic character. I took to listening to Wagner, but reports in magazine articles that I drank heavily are an exaggeration. The trouble, is once one article said it, other articles copied it, because it made a good story. Anything that has appeared in print so many times, must be true.
My dreams at that time were rather disturbed. Before my condition had been diagnosed, I had been very bored with life. There had not seemed to be anything worth doing. But shortly after I came out of hospital, I dreamt that I was going to be executed. I suddenly realized that there were a lot of worthwhile things I could do if I were reprieved. Another dream that I had several times, was that I would sacrifice my life to save others. After all, if I were going to die anyway, it might as well do some good. But I didn't die. In fact, although there was a cloud hanging over my future, (It cast a cloud over his future) I found to my surprise, that I was enjoying life in the present more than before. I began to make progress with my research, and I got engaged to a girl called Jane Wilde, who I had met just about the time my condition was diagnosed. That engagement changed my life. It gave me something to live for. But it also meant that I had to get a job if we were to get married. I therefore applied for a research fellowship at Gonville and Caius (pronounced Keys) College, Cambridge. To my great surprise, I got a fellowship, and we got married a few months later.

The fellowship at Caius took care of my immediate employment problem. I was lucky to have chosen to work in theoretical physics, because that was one of the few areas in which my condition would not be a serious handicap. And I was fortunate that my scientific reputation increased, at the same time that my disability got worse. This meant that people were prepared to offer me a sequence of positions in which I only had to do research, without having to lecture.

Up to 1974, I was able to feed myself, and get in and out of bed. Jane managed to help me, and bring up the children, without outside help. However, things were getting more difficult, so we took to having one of my research students living with us. In return for free accommodation, and a lot of my attention, they helped me get up and go to bed. In 1980, we changed to a system of community and private nurses, who came in for an hour or two in the morning and evening. This lasted until I caught pneumonia in 1985. I had to have a tracheostomy operation. After this, I had to have 24 hour nursing care. This was made possible by grants from several foundations.

Before the operation, my speech had been getting more slurred, so that only a few people who knew me well, could understand me. But at least I could communicate. I wrote scientific papers by dictating to a secretary, and I gave seminars through an interpreter, who repeated my words more clearly. However, the tracheostomy operation removed my ability to speak altogether. For a time, the only way I could communicate was to spell out words letter by letter, by raising my eyebrows when someone pointed to the right letter on a spelling card. It is pretty difficult to carry on a conversation like that, let alone write a scientific paper. However, a computer expert in California, called Walt Woltosz, heard of my plight. He sent me a computer program he had written, called Equalizer. This allowed me to select words from a series of menus on the screen, by pressing a switch in my hand. The program could also be controlled by a switch, operated by head or eye movement. When I have built up what I want to say, I can send it to a speech synthesizer. At first, I just ran the Equalizer program on a desk top computer. However David Mason, of Cambridge Adaptive Communication, fitted a small portable computer and a speech synthesizer to my wheel chair. This system allowed me to communicate much better than I could before. I can manage up to 15 words a minute. I can either speak what I have written, or save it on disk. I can then print it out, or call it back, and speak it sentence by sentence. Using this system, I have written a book, and dozens of scientific papers. I have also given many scientific and popular talks. They have all been well received. I think that is in a large part due to the quality of the speech synthesizer, which is made by Speech Plus. One's voice is very important. If you have a slurred voice, people are likely to treat you as mentally deficient: Does he take sugar? This synthesizer is by far the best I have heard, because it varies the intonation, and doesn't speak like a Dalek. The only trouble is that it gives me an American accent. However, the company is working on a British version.

I have had motor neurone disease for practically all my adult life. Yet it has not prevented me from having a very attractive family, and being successful in my work. This is thanks to the help I have received from Jane, my children, and a large number of other people and organisations. I have been lucky, that my condition has progressed more slowly than is often the case. But it shows that one need not lose hope.

Questions for an interview for a BBC Television concerning disability

Why do you feel you have been given celebrity status as a scientist? Do you think your disability has a bearing on that? 

I'm sure my disability has a bearing on why I'm well known. People are fascinated by the contrast between my very limited physical powers, and the vast nature of the universe I deal with. I'm the archetype of a disabled genius, or should I say a physically challenged genius, to be politically correct. At least I'm obviously physically challenged. Whether I'm a genius is more open to doubt.

How do you deal with the way you are described all the time by journalists? 

I don't pay much attention to how journalists describe me. I know it is media hype. They need an Einstein like figure to appeal to. But for them to compare me to Einstein is ridiculous. They don't understand either Einstein's work, or mine.

What do you say to the comment "isn't it a shame that such a brilliant mind is trapped inside a useless body"?

I have never heard anyone say isn't it a shame that such a brilliant mind is trapped inside a useless body. If I did, I would treat it with the contempt it deserved.

Does being known as brilliant make a difference to the way you are treated as a disabled person?

I generally find that even people that haven't heard of me treat me well and are helpful. I'm not sensitive, if occasionally they patronize me, I just feel it's their mistake.

Does being disabled make a difference to the way you are treated as a brilliant person? 

Being disabled, or physically challenged, makes no difference to how my scientific colleagues treat me apart from practical matters like waiting while I write what I want to say.

Can the study of Physics take you beyond physical limitations?
Of course Physics can take one beyond ones limitations, like any other mental activity. The human race is so puny compared to the universe that being disabled is not of much cosmic significance.

Wouldn't you rather have been a bus driver or something?
I never wanted to be a bus driver but I did fancy being prime minister. However, I'm glad I left the job for Tony. I prefer physics to shaking hands and I feel my work may last rather better than his.

Have your working surroundings and colleagues had to adjust to incorporate you as a disabled person? If so how?
My university department is housed in an old printing works but it has been fitted with an entrance ramp and other adaptations for my use. The department will shortly move to a new building and I have been able to make sure the design is suitable. My colleagues have been very helpful. They treat me like anyone else, but help with my special needs. That is what I like.

What sort of music do you like and why? Does it help you relax? Please name your favorite composers/bands/singers/performers.
I mainly listen to classical music: Wagner, Brahms, Mahler etc., but I like pop as well. What I want is music with character.

15 3 2018